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Table of Contents

Think

Assess

 Patient: Autonomy

 Practitioner: Beneficence & Nonmaleficence

 Public Policy: Justice

Conclude

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11. Death with Dignity - Assisted Dying

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A physician [medical practitioner] is obligated to consider more than a diseased organ, more even than the whole patient - the physician [medical practitioner] must view the patient within the patient’s world.
~ Harvey Cushing


Abstract

“Death with Dignity” laws, are legal in 11 jurisdictions in the US and allow individuals to make end-of-life decisions. The central issue surrounding these laws is whether or not practitioner participation in assisted dying is compatible with the medical profession’s code of ethics, core tenets, and patient trust. The American Medical Association (AMA) and American College of Physicians (ACP) do not directly address this issue in their codes of ethics. The AMA considers euthanasia, which is the direct causation of death by a practitioner, to be fundamentally incompatible with the physician’s role as a healer. However, death with dignity, which involves the patient self-administering lethal medication with a prescription, is argued to be different. The ACP prohibits cruel or unusual punishment, but if the patient’s autonomous choice, the practitioner’s best interests, and state laws are satisfied, there may be no harm to the patient-practitioner relationship or social trust in the medical profession. The question is raised as to whether medicine should only be a healing art or if the art of dying should also be part of medical practice. There is also the question of public policy and the potential effect on the patient-practitioner relationship and social trust in the medical profession if death with dignity laws are enacted.

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Think 

[11:1] Death with dignity laws, also known as ‘assisted-dying’ or ‘aid-in-dying,’ are based on the individual principle of autonomy (informed consent), in which it is believed that it is the patient who should make end-of-life decisions. Death with dignity is legal in eleven jurisdictions: California, Colorado, District of Columbia, Hawaii, Montana, Maine, New Jersey, New Mexico, Oregon, Vermont, and Washington. However, just because some action is legally permissible for a medical practitioner to participate in does not necessarily mean that the practitioner must or is obligated to participate in that action.

Assess
Patient: 1) Autonomy

[11:2] There is no contesting that there are many competent patients or persons, not necessarily patients at the time of request with full decisional capacity, who are autonomously asking for medical assistance in the planning and control of their death, and no one contests the legality of states to make such actions permissible as a social attempt to help actualize the fair distribution of benefits and burdens for the patient as a matter of justice (be fair).

Practitioner: 2) Beneficence & 3) Nonmaleficence

[11:3] The central issue concerning the death with dignity laws or practitioner-assisted dying topic is whether or not such participation by the practitioner is compatible with: 

  • 1. the medical profession’s code of ethics,
  • 2. the core tenets of the medical profession, and
  • 3. the promotion of patient trust in the medical profession.

[11:4] Starting with the question of compatibility with the medical profession’s code of ethics. Currently, no entries in the American Medical Association (AMA) Code of Medical Ethics or the American College of Physicians (ACP) directly address death with dignity or practitioner-assisted suicide. The closest reference to the ethical issues related to this topic is euthanasia and capital punishment.

[11:5] The American Medical Association (AMA) Code of Medical Ethics 5.8 defines euthanasia as:

The administration of a lethal agent by another person to a patient for the purpose of relieving the patient’s intolerable and incurable suffering.

[11:6] Euthanasia refers to the deliberate and direct causation of death by a practitioner, and the American Medical Association (AMA) continues to say in 5.8:

Permitting physicians [practitioners] to engage in euthanasia would ultimately cause more harm than good. Euthanasia is fundamentally incompatible with the physician’s [practitioner’s] role as healer.

[11:7] However, death with dignity, or practitioner-assisted suicide, is argued to be significantly different from euthanasia. Death with dignity only refers to giving a patient a prescription of lethal medication to be voluntarily self-administered by the patient, not to be administered by the practitioner.

[11:8] The American College of Physicians (ACP) prohibits practitioners from engaging in cruel or unusual punishment such as capital punishment or other types of disciplinary activities beyond those permitted by the United Nations Standard Minimum Rules for the Treatment of Prisoners.

[11:9] What is difficult in death with dignity is that if the patient is autonomously choosing to have practitioner assistance in death, in accordance with their reasonable goals, values, and priorities—autonomy (informed consent), and if under the principles of beneficence (do good) and nonmaleficence (do no harm) the practitioner determines that assistance in death would be in accordance with the core professional tenets of the patient’s best interests as determined by the patient’s reasonable goals, values, and priorities and if the patient and practitioner are in a state of jurisdiction in which death with dignity is legally permissible (justice—be fair), then all four principles of autonomy (informed consent), beneficence (do good), nonmaleficence (do no harm), and justice (be fair) would have been satisfied making it morally permissible for practitioner participation in the giving to a patient a lethal prescription to be self-administered by the patient.

[11:10] There is a 100% certainty that everyone alive will die. Of that 100%, 60% of Americans will die in acute care hospitals, and 20% will die in nursing homes, all under the care of a practitioner.

[11:11] The question arises: is death with dignity

fundamentally incompatible with the physician’s [practitioner’s] role as healer? (AMA 5.8)

[11:12] Is medicine only a healing art, or should the art of dying also be part of medical practice? Some will argue that the problem is that of the medical-provider’s deadly intent and that the ensuing negative professional reputation could result in irreparable harm to the social perception of the professional function and role of the medical profession as a healing art.

Public Policy: 4) Justice

[11:13] With public policy, the issue is whether or not practitioner-assisted death would harm the patient-practitioner relationship and decrease the social trust of the medical profession. Logically, if no violations are being made concerning the patient’s autonomous choices (informed consent), and if the practitioner is only engaged in patient-centered practices that maximize the patient’s best interests in accordance with beneficence (do good) and nonmaleficence (do no harm), and if these practices are consistent with state laws that have been enacted through the process of democratic representation of the people—justice (be fair) then it reasonably follows that there would be no adverse effect on the patient-practitioner relationship or social trust of the medical profession for the practitioner to participate in death with dignity where it is legal to do so.

Conclude

[11:14] Death with dignity or practitioner-assisted suicide is state-dependent. If the participation by the health care professional is not compatible with: 

  • 1. the medical profession’s code of ethics of nonmaleficence (do no harm),
  • 2. the core tenets of the medical profession being a healing profession, and
  • 3. the promotion of patient trust that the medical profession will only pursue life,

then that would be a sufficient argument to oppose being complicit in activities that do not promote the medical profession’s goals, values, and priorities.

[11:15] In summary, the topic of death with dignity and practitioner-assisted suicide is complex and state-dependent. If practitioner participation in assisted dying does not align with the medical profession’s code of ethics, core tenets, and the promotion of patient trust, then there is a sufficient argument to oppose such activities. However, if these practices are consistent with state laws and do not adversely affect the patient-practitioner relationship or social trust in the medical profession, it may be considered morally permissible for practitioners to participate in death with dignity where it is legal to do so.

(See also: 5. Assisted Suicide, 6. Capital Punishment - Executions, 17. Euthanasia, 27. Interrogations, and 58. Torture)

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11. Review Questions

1. Death with dignity laws are based on the practitioner’s professional obligation to help the patient make end-of-life decisions. 

2. Which of the following are the central issues concerning the death with dignity laws: 

3. There are no entries in the American Medical Association (AMA) or the American College of Physicians (ACP) on the topic of Death with Dignity. 

4. Death with dignity only refers to giving a patient a prescription of lethal medication to be voluntarily self-administered by the patient, not administered by the practitioner: 

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11. Clinical Vignettes

1. Mr. Emery Wright, an 82-year-old retiree is diagnosed with a terminal illness and expresses a desire to end their life peacefully. They have read about death with dignity laws and have asked their practitioner about the possibility of this option. The patient lives in a state where death with dignity is legal. What is the fundamental belief of death with dignity laws?

2. Ms. Athena Adams, a 79-year-old retiree is terminally ill patient has requested assistance in ending their life. The patient's practitioner is faced with the decision of whether to comply with the request or not. The practitioner is concerned that complying with the request would violate the medical profession's code of ethics, the core tenets of the medical profession, and the promotion of patient trust.

3. Mr. Abel Nelson, an 81-year-old retiree has requested assistance in ending their life due to a terminal illness. The patient's practitioner is unsure about the ethical guidance provided by the American Medical Association (AMA) Code of Medical Ethics and the American College of Physicians (ACP) regarding this matter.

4. Ms. Jessica Hassan, an 86-year-old retiree has been diagnosed with a terminal illness and has a prognosis of only a few months to live. They express to their practitioner that they would like to have control over the manner and timing of their death. The patient asks about the option of "death with dignity.” What is the correct definition of "death with dignity"?

5. Mr. Nathanael King, a 42-year-old sound engineer comes to a practitioner to request treatment. However, the treatment being asked for by the patient goes against the medical profession's code of ethics of nonmaleficence and the core tenets of being a healing profession. Additionally, the treatment would also negatively impact society's trust in the medical profession. Given this information, which of the following statements would be the most appropriate course of action for the practitioner to take?

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11. Reflection Vignettes

1. Mr. Michael Johnson was a 70-year-old retired accountant who had been struggling with terminal cancer for the past three years. He had undergone multiple rounds of chemotherapy and radiation therapy, but the cancer had spread to various organs, and his condition had deteriorated rapidly. He was under the care of Dr. Emily White, an attending practitioner who specialized in palliative care. During a routine visit, Mr. Johnson expressed his desire to end his life on his own terms. He said that the pain and discomfort were unbearable, and he did not want to suffer anymore. He requested a prescription for medication that would allow him to end his life peacefully and with dignity. Dr. White listened to Mr. Johnson's concerns carefully and empathetically. She understood that Mr. Johnson was in a great deal of pain and discomfort, and she wanted to provide him with the best possible care. She also recognized that Mr. Johnson was mentally competent and fully informed about his medical condition and prognosis.

Think

Assess

  Patient: Autonomy

  Practitioner: Beneficence & Nonmaleficence

  Public Policy: Justice

Conclude

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2. Ms. Patricia Brown was a 76-year-old retired librarian who had been under the care of Dr. Rachel Johnson, an attending practitioner who specialized in hospice and palliative care. Ms. Brown had been battling a terminal illness for several years, and her condition had recently worsened, with increasing pain and discomfort. Despite the best efforts of Dr. Johnson and her team, Ms. Brown's symptoms were becoming increasingly difficult to manage. During a visit with Dr. Johnson, Ms. Brown expressed her desire to die with dignity in the presence of her family and friends. She requested a prescription for medication that would allow her to do so. Dr. Johnson recognized that Ms. Brown was of sound mind and had been fully informed about her medical condition and prognosis. Dr. Johnson also knew that Ms. Brown lived in a state where death with dignity was legal.

Think

Assess

  Patient: Autonomy

  Practitioner: Beneficence & Nonmaleficence

  Public Policy: Justice

Conclude

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