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Table of Contents

Think

Assess

 Patient: Autonomy

 Practitioner: Beneficence & Nonmaleficence

 Public Policy: Justice

Conclude

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4.   Advance Directives - Planning

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The medical practitioner should not treat the disease but the patient who is suffering from it.
~ Maimonides

Abstract

The Patient Self-Determination Act of 1990 mandates that all medical institutions receiving Medicaid or Medicare payments must inform patients of their legal rights to make decisions about their medical care, periodically inquire about advanced directives, document patients’ medical care wishes, and provide educational programs on patient self-determination. An advance directive (living will) and durable power of attorney for healthcare allow patients to self-determine their treatment preferences and establish a medical decision-making surrogate. The durable power of attorney is accompanied by professional responsibilities for both the practitioner and surrogate, with the surrogate obligated to use the patient’s reasonable goals, values, and priorities when making medical decisions. If these are not determinable, the surrogate must maximize the patient’s best interests using the principles of beneficence and nonmaleficence. The practitioner has a role in educating the surrogate on decision-making. The living will must be respected if it provides clear instructions, otherwise the decision-making authority goes to the surrogate appointed by the durable power of attorney.

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Think 

[4:1] Autonomy, or self-determination, is valued precisely because it is the patient who is considered to be in the best position to determine what their own subjective goals, values, and priorities are, which are the necessary conditions for determining what objective treatments will maximize the patient’s best interests.

[4:2] This recognition resulted in Congress passing the patient Self-Determination Act of 1990, which mandates by federal law that all medical institutions that receive any Medicaid or Medicare payments must: 

  • 1. inform patients of their legal rights to make decisions concerning their medical care,
  • 2. periodically inquire as to whether the patient has executed an advanced directive,
  • 3. document in the medical records the patient’s medical care wishes, and
  • 4. provide educational programs for staff, patients, and the community on ethical issues concerning patient self-determination and advance directives.

Assess
Patient: 1) Autonomy

[4:3] An advance directive, or a living will, is a preemptive act of a patient with decisional capacity to autonomously self-determine what treatment preferences they authorize under various conditions, and a durable power of attorney for healthcare (POA) establishes who is to serve as their medical decision-making surrogate if they were to ever be in a state of lacking decisional capacity. A durable power of attorney is durable because it only comes into effect once the patient loses decisional capacity and continues throughout that duration of time.

[4:4] Although the living will is the most direct communication from the patient as to what treatments the patient would or would not want to give informed consent to, the living will can also be the least helpful if the patient is unable to predict future events and changing desires. This can result in vague terms like “no heroic measures” or “no extraordinary care,” which in practice is virtually no better than saying nothing at all. This lack of contextual precision is where surrogate decision-making can make its helpful contribution.

Practitioner: 2) Beneficence & 3) Nonmaleficence

[4:5] The durable power of attorney (POA) is accompanied with professional responsibilities for both the practitioner and the surrogate. As a matter of beneficence (do good) and nonmaleficence (do no harm), the practitioner must make sure that the surrogate is educated about how to make medical decisions for the patient. First, the surrogate decision maker is not to be making medical decisions for the patient using their own goals, values, and priorities. Second, the surrogate, or proxy, must make medical decisions that maximize the patient’s best interests—beneficence (do good) and nonmaleficence (do no harm), using the patient’s reasonable goals, values, and priorities. In other words, the surrogate decision maker must make medical decisions for the patient as if the surrogate were the patient themself making the decision. This is why the practitioner must include the surrogate in the patient’s health care discussions as much as possible before the patient loses their decisional capacity, especially when having direct discussions about the patient’s reasonable goals, values, and priorities. If the practitioner fully informs the surrogate of the circumstances and medical condition of the patient, and if the surrogate understands how to make decisions that will maximize the patient’s best interests, then this will typically avoid some of the inherent problems of vagueness and imprecision that frequently occur with living wills.

[4:6] However, if for some reason the patient’s reasonable goals, values, and priorities are not determinable, then the responsibility of the surrogate, in consultation with the practitioner, will be to maximize the patient’s best interests, using the moral principles of beneficence (do good) and nonmaleficence (do no harm).

Public Policy: 4) Justice

[4:7] The federal government enacted the Patient Self-Determination Act, which essentially makes every medical institution in the country responsible for:

  • 1. enforcing the patient’s right to autonomously choose what medical care they will receive (Living Will), 
  • 2. who their surrogate will be (Durable Power of Attorney—POA), and
  • 3. document the Living Will and Durable Power of Attorney in the electronic medical records (EMR).

Conclude

[4:8] Autonomous decisional authority is a universal patient right. Therefore, if there is a living will that provides clear and distinct instructions regarding a foreseen medical circumstance, then that living will must be respected. If there is no living will, or the living will is not clear for a particular circumstance, then the decision-making authority will go to whoever has been appointed to be the surrogate decision maker by the patient’s durable power of attorney (POA). When making medical decisions, the surrogate has the legal and moral obligation to use the patient’s reasonable goals, values, and priorities. In other words, the surrogate must make medical decisions as if they were the patient, which is not necessarily how the proxy might make decisions for themself. The practitioner has a vital role in educating the patient’s surrogate as to how the surrogate is to make medical decisions by using the patient’s reasonable goals, values, and priorities, and if those are not knowable, then by maximizing the patient’s best interests using beneficence (do good) and nonmaleficence (do no harm).

[4:9] In summary, advance directives are essential tools in respecting and upholding patient autonomy in medical care. Living wills provide guidance on the patient’s desired treatment, while durable power of attorney for healthcare appoints a surrogate to make decisions on their behalf when necessary. It is crucial for practitioners to educate patients and surrogates about their roles and obligations, ensuring that medical decisions are made based on the patient’s reasonable goals, values, and priorities or, when these are not known, in the best interest of the patient. By doing so, healthcare professionals can effectively support patients’ rights to self-determination and maintain trust in the medical profession.

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4. Review Questions

1. Congress passed the Self-Determination Act of 1990 federally mandates that any institution that receives Medicaid or Medicare payments must: 

2. A durable power of attorney is durable because a power of attorney:

3. Living wills can be the most direct patient communication, and they can also be the least helpful.

4. It is essential to select a trusted surrogate as the surrogate will be making medical decisions using their own goals, values, and priorities.

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4. Clinical Vignettes

1. Mr. Gabriel Ahmed, a 52-year-old network administrator is admitted and is informed of their rights to make decisions about their medical care. The practitioner periodically asks the patient if they have an advanced directive and documents their wishes in the medical records. The medical institution also regularly offers educational programs for staff, patients, and the community on ethical issues related to self-determination and advance directives. Which of the following best describes the legal requirement imposed on the medical institution?

2. Ms. Sofia Ali, a 62-year-old banker has a durable power of attorney for healthcare (POA) in case they ever lose decisional capacity. This document designates a surrogate to make medical decisions on their behalf if they are unable to do so themselves. What makes the durable power of attorney (POA) durable?

3. Mr. Caden Chen, a 68-year-old marketing professional has created a living will expressing their treatment preferences, but the document contains vague terms like "no heroic measures" or "no extraordinary care." This lack of specific instructions can make it difficult for healthcare providers to make decisions on behalf of the patient. How can a surrogate be helpful?

4. Ms. Leslie Hamilton, a 72-year-old retiree is diagnosed with a progressive, degenerative illness that will eventually result in a loss of decisional capacity. The patient has a durable power of attorney (POA) and appoints their spouse as surrogate decision maker. The patient has made it clear that they do not want any medical interventions that will prolong their life if they are in a persistent vegetative state, and documents that in the medical records. What is the primary responsibility of the practitioner when working with the surrogate decision-maker in this situation?

5. Mr. Griffin Singh, an 82-year-old retiree has been admitted with a serious illness and is unable to make decisions regarding their medical care. The healthcare team has discovered that the patient has a living will in place. The patient also has a durable power of attorney that appoints a surrogate decision-maker. Which of the following statements best describes the decision-making process in this situation?

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4. Cases: 4a, 4b, 4c*

Instructions
1. Read Prompt, 2. Think, Assess, & Conclude (TAC), then 3. Select an answer that mirrors the TAC conclusion.

Note: After success, select each of the wrong answers to understand why each of them is wrong.

4a

An adult patient, unable to communicate for themself, is admitted to the ICU in the end stages of small-cell-lung-cancer (SCLC), a particularly aggressive form of lung cancer. The spouse and family want the practitioner to do everything possible. A friend of the patient, estranged from the spouse and family, presents a recently signed and witnessed durable power of attorney, authorizing the friend to be the surrogate decision maker. The friend tells the practitioner to stop all medical treatment other than hydration, nutrition, and pain management.

Think

Assess

  Patient: Autonomy

  Practitioner: Beneficence & Nonmaleficence

  Public Policy: Justice

Conclude










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4b

A patient fills out a living will and states explicitly that they never want to be on a heart-lung machine under any condition. The living will is included in the medical records. Shortly after that, a medical emergency occurs in which the patient will need to be temporarily on a heart-lung machine to get through the emergency; then, the patient will be able to live everyday life.

Think

Assess

  Patient: Autonomy

  Practitioner: Beneficence & Nonmaleficence

  Public Policy: Justice

Conclude







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4c*

A patient with metastatic pancreatic cancer is admitted to the hospital with shortness of breath. The patient does not have decisional capacity. The patient’s youngest offspring, who holds the medical power of attorney, makes the patient DNR. The patient’s eldest offspring disagrees with this decision. What should be done?

Think

Assess

  Patient: Autonomy

  Practitioner: Beneficence & Nonmaleficence

  Public Policy: Justice

Conclude










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